On October 17, 2025, members of the Association “Defeating Cystic Fibrosis” participated in an important informational meeting dedicated to the care and treatment of patients with cystic fibrosis (mucoviscidosis). The event brought together family doctors, pediatric and pulmonology specialists, researchers, and representatives of the patient community. The meeting was organized by the Mother and Child Institute, with the active participation of: The main guest of the event was Prof. Dr. Lutz Nährlich, Director of the Pharmacoepidemiologic Study within the European Cystic Fibrosis Patient Registry, Justus Liebig University…

We are in the holiday season. Everyone is caught up in the excitement of preparations: what to put on the festive table, what gifts to buy for their loved ones, where to spend these special days—maybe with friends, maybe with family, or even on a vacation abroad. However, these concerns, ordinary for a healthy person, are impossible for a patient with cystic fibrosis. While some look forward to the magic of Christmas or New Year’s, patients with this rare disease are focused solely on how to survive….

Cystic fibrosis is a rare genetic disease that changes the lives of not only those diagnosed but also their families. Behind every affected child are parents who are engaged in an ongoing battle, a battle often fought in silence. These parents become true guardians of their children’s health, sacrificing everything to offer them a life as close to normal as possible. However, beyond the tireless care for their child, these parents carry a huge emotional burden: the pain of seeing their child suffer and the continuous struggle…

In a world where every day brings new challenges, living with cystic fibrosis (CF) means a constant struggle for air, health, and normalcy. The condition is typically diagnosed in childhood, but there are rare cases where it is discovered later in life. Such is the case of Daniela Coptilet, a 25-year-old from Briceni district, who learned she had cystic fibrosis after a lifetime of symptoms being attributed to other conditions. “Since I was a child, I remember having a constant cough. I couldn’t gain weight, and my…

For families living with a cystic fibrosis diagnosis, life in the Republic of Moldova brings enormous challenges. The lack of access to innovative genetic treatments and a well-equipped healthcare system forces many to make difficult decisions: to leave their homes and move to other countries to give their children a chance at life. While some emigrate for financial opportunities, these families leave for treatment and medical safety. Today, we share the stories of two children, Nichita and Victor, whose lives have been radically transformed after receiving the…

Imagine for a moment that every breath is a challenge. That the air you take into your lungs doesn’t offer relief, but pain and effort. That in the morning, instead of waking up with plans for the future, you wake up to a calendar full of procedures that cannot be postponed. This is the daily reality of a cystic fibrosis (CF) patient in the Republic of Moldova – a continuous struggle for survival. Cystic fibrosis is a rare genetic disease that affects the lungs, pancreas, and other…