Trikafta changes lives, but not in Moldova

For families living with a cystic fibrosis diagnosis, life in the Republic of Moldova brings enormous challenges. The lack of access to innovative genetic treatments and a well-equipped healthcare system forces many to make difficult decisions: to leave their homes and move to other countries to give their children a chance at life.

While some emigrate for financial opportunities, these families leave for treatment and medical safety. Today, we share the stories of two children, Nichita and Victor, whose lives have been radically transformed after receiving the necessary treatments abroad.

Between longing for home and a better life

Nichita, a 12-year-old boy from Sireți, Strășeni, has been living in the United Kingdom with his family for two years. Although settling in was initially difficult, the decision to leave became inevitable for him to receive the necessary treatments.

Today, Nichita follows an innovative treatment regimen with the medications Kaftrio and Kalydeco (Trikafta), which he has been taking for nearly two years, along with Pulmozyme. 'He feels very well, has a lot of energy, and is growing and developing normally,' his mother shares. Additionally, Nichita, who also has diabetes, receives insulin and benefits from regular monitoring.

The British healthcare system provides integrated support. A nurse comes to their home every month to assess him, and a team of doctors from a specialized center examines him once every six months. Annually, the family visits a large center for detailed check-ups. 'When he catches a cold, the nurse can come twice a month. Breathing exercises are incorporated into games, and all these things help him enormously,' his mother explains.

Nichita is an active and lively boy. In addition to his treatments and medical care, he has included swimming in his daily routine, which helps him improve his physical condition and build endurance.

Additionally, Nichita was selected to attend a special camp in Florida for children with special needs, alongside specialized doctors. 'Unfortunately, we couldn't accept, as it was too far from us. However, here, they offered other opportunities, such as visits to the ice rink for children with diabetes,' says his mother.

However, Nichita's family maintains a deep emotional connection with the doctors in Moldova. 'My dear ladies: Ala Jivalcovschi, Oxana Turcu, Tatiana Macalet, Cristina Tomacinschii… They have been by our side since Nichita was two months old. Nothing compares to their dedication. We miss them greatly!'

Victor, a 15-year-old boy from the Ștefan Vodă district, has been living in Germany for two and a half years, where modern treatment has given him a chance at a normal life. After starting treatment with Kaftrio and Kalydeco (Trikafta) in November 2022, his health has improved significantly.

The first three months were more difficult. He had to take a double dose of colistin to eliminate the Pseudomonas infection, but now tests show that the bacteria is no longer present," his mother shares. Victor no longer needs inhalations, and the cough, which had been a constant part of his life until then, has completely disappeared.

In Germany, Victor undergoes regular check-ups: every three months, he has detailed tests, and once a year, he has a full check-up. Additionally, he receives support from a nutritionist who adjusts his diet, Kreon doses, and vitamin supplements.

Sports are now part of his daily routine. The doctor's recommendation to go to the gym to develop his muscle mass was welcomed, providing him with both physical benefits and a positive mental state.

"We are extremely satisfied with the treatment and support we receive here," says Victor's mother.

The harsh reality of parents who choose to leave

These stories reflect a painful reality: in the Republic of Moldova, cystic fibrosis patients do not have access to life-saving treatments like Kaftrio and Kalydeco (Trikafta). The limited healthcare system and insufficient resources force parents to leave behind their homes, families, and culture to save their children.

These parents do not leave to improve their standard of living, but to ensure the survival of their children. It is a desperate yet necessary choice that brings both hope and homesickness. While Nichita and Victor are success stories, they highlight the urgent need for investment in the healthcare system in Moldova. Every child has the right to treatment, to life, and to a carefree childhood—regardless of where they were born.

A call to action

Cystic fibrosis should not be a sentence. Moldova must take urgent action to integrate these innovative treatments into its healthcare system and provide patients with the chance to live a healthy life at home, with their families.

Nichita and Victor's stories remind us that every child deserves a chance at life. It is time for all of us to get involved—through donations, awareness, and support for legislative changes—so that children in Moldova no longer have to leave their country to survive.

Together, we can make a difference!

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