About Us

To support patients with cystic fibrosis and their families, the National Association Învigem Fibroza Cistică (AO ANIFC) was established in 2010 in the Republic of Moldova.
Similarly, the association is a member of the European association that manages cystic fibrosis at the community level.
We are a community dedicated to supporting people affected by cystic fibrosis. Our mission is to improve patients' quality of life, promote access to treatments, and raise awareness about this disease.

Members of the Association

President: Mariana Protopop

With a deep understanding of patients' needs, they ensure that every initiative has a real impact and inspires the community to build a healthier future.

Executive Director: Tatiana Vlasî

Our director coordinates the organization's activities with passion and professionalism, becoming a pillar of support for the cystic fibrosis-affected community.

Administrator: Sergiu Vlasî

Driven by the desire to support those affected by this rare disease and their families, they created a platform for assistance, education, and advocacy.

members

The current members of the association are parents of beneficiaries who deeply understand the daily challenges faced by cystic fibrosis patients. They continue to fight for the support and development of the association's activities, despite the funding challenges they face.

beneficiaries

The beneficiaries of the initiatives carried out by the association are children and adults who receive support in the form of subsidized medications and specific investigations, conducted within the specialized cystic fibrosis outpatient center, part of the IMSP Mother and Child Center.

Our Impact

  • The association has contributed to the establishment of a specialized cystic fibrosis outpatient center within the IMSP Mother and Child Center.
  • In the pulmonology department of the same institution, two wards are specifically dedicated to children with cystic fibrosis.
  • Advocacy and lobbying regarding the treatment protocol, the national program, and the inclusion of necessary medications in the list of subsidized medications, including Dornase alfa (Pulmozyme) and Bramitob (inhaled antibiotic).
  • Collaborations with various organizations for fundraising and donations (e.g., e-Rotary club).
  • Collaborations with the media (e-sănătate, sanatateinfo.md, Moldova1).
  • Organization of conferences and dissemination of updated information about cystic fibrosis.